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Wednesday, January 22, 2014

Time Out

Well I seem to be over whatever it was that was bugging me, excuse the pun, and I am looking forward to time away this weekend.  Kyle is officially on leave and taking this week to rest and relax.  Poor man is overworked, much like my brother is at the moment, and was in a bad state of needing time out.  Hooray for being allowed a week off.

He planned to take me away to meet his dad and gran who live in Orkney, but not before okaying it with the 'parentals' first.  I have very over protective parents who I know love me to bits, but at times I wish they would just let up a bit and allow me more freedom...lol  (Okay mom you can stop crying now...hehe)  Anyway on Saturday afternoon Kyle phoned my dad while he was mowing the grass and asked if it would be alright for us to go away for a few days to meet the other side of his family.  Dad, the calmer, easier parental...hehe, said he didn't think it would be a problem but had to check with the boss/ball and chain/dragon lady first.  No he didn't really say all that , but he left the decision up to my mom!!!!EEEEK!!!!

Lucky for me she has decided to cut one of the strings and let me go.  Not without stipulating though that Kyle have a list of my meds and he check that I take everything on it, as well as keeping up with my nebs and physio while we are away.  We will have to make sure though that we leave with plenty of daylight just to get away from our terrible farm roads with my oxygen machine strapped into the back seat like a precious baby so it doesn't get damaged.

So I am looking forward to that, we will leave on Saturday afternoon and come home on Tuesday, in time for my clinic appointment on Wednesday.  I don't know if I should be nervous about my appointment or not as I have had a strange month since coming home, being really well, then coming down with flu and then trying to get rid of a cough that has lingered.  My mom has been on at me to weigh again as she thinks I have lost weight, but I told her I will weigh at clinic.  I don't want to be depressed before I have to...lol

So look forward to some more photo postings and updates on Facebook and I will have a good time. :) :) :)


Thursday, January 16, 2014

Putt Putt good for Physio?

I haven't really been out anywhere lately because I haven't been feeling well, not to mention how unfit I am.
So Kyle and I decided to remedy this.

We had a massive choice a head of us today, do we go and Watch Dinosaurs 3D, (which isn't much Physio) or do we battle it out on the Putt Putt course?

Jip, you guessed it, Putt Putt won.

We played one round on each course, the first round was close, in the beginning I was owning the game, I was miles ahead. However somewhere from hole 9 things changed, Kyle started catching up (*because I let him ;-) *), by the end of the first game, I was kind of tired, walking around in the heat was not too much fun, not to mention how much effort it takes to swing a Putt Stick/Club (not sure what the technical name is), Lol. 

After round one, kyle and I got a powerade and tallied up our scores, he had beaten me by one little point. Oh boy did he almost do a happy dance, but before he did, I just had to bring down to earth again, I reminded him that we still had one more game.

Round two seemed to go alright, I was in the lead again, until Kyle decided to get a hole in one, I was so shocked I couldn't carry on, My aim was off, I hit the ball too many times etc etc. After Kyle being all mopey for being behind, being last, I went easy on him (I like to think) and he won, by 4 points.

Okay okay so maybe he did win fair and square, this just means that next time I will have to up my game :-)

I really enjoyed the day, I had tons of fun, not to mention good physio. By the end of it, I was coughing alot and a little out of breathe. But it was all worth it.

We ended it off a nice swim to try and escape the 36 degree temperature.

xoxox 












Wednesday, January 15, 2014

Do the Quiz

I tested my hand at making a quiz so,Click on the link below and test your knowledge about Cystic Fibrosis.

Let me know how you did :-)

xoxox <3

https://testmoz.com/243977

Friday, January 10, 2014

Who Discovered Cystic Fibrosis?

In 1905, Karl Landsteiner, an Austrian physician and biologist described meconium ileus for the first time. Karl Landsteiner also discovered the Poliovirus and won the Nobel peace prize in medicine for his discovery of Human blood groups

Later in 1936, Swiss physician Guido Fanconi described the relationship between cystic fibrosis, celiac disease, and bronchiectasis in one of his papers. However, the first person to actually identify the disease was Dorothy Hansine Andersen, a physician from the US. She was also the first American to describe the disease accurately and this is why most experts credit her for the discovery of the Cystic Fibrosis disease.

Dorothy Andersen was born on May 15th, 1901. She had a B.A from Mount Holyoke College and an M.D. from Johns Hopkins University. She practiced at Babies Hospital of Columbia Presbyterian Medical Center in New York. She was also a faculty member at the University of Rochester and Columbia College of Physicians and Surgeons. She was actively involved in training heart surgeons and the study of nutrition. In 1938, she published an article in the American Journal of Diseases of Children.

The article was called “Cystic Fibrosis of the Pancreas and Its Relation to Celiac Disease: a Clinical and Pathological Study” where she first mentioned Cystic Fibrosis, explored its characteristics and its connection with lung and intestinal diseases. She was also the first physician to consider it as a recessive disease and to use pancreatic enzyme substitute as a treatment. She died in 1963. In 2002, She was included in the National Women’s Hall of Fame for her contribution to medical science.

Dr. Dorothy Hansine Andersen died in 1963 from Lung cancer. She was a heavy smoker.


What parts of the body does Cystic Fibrosis affect

Cystic Fibrosis doesn't just affect the Lungs and the Pancrease. It affects any hollow organ .. Have a look and see all the many different ways Cystic Fibrosis affects a sufferer.



Tuesday, January 7, 2014

Under the Weather

Since I came home from hospital I have been on the go the whole time with hardly any time to myself and I think it has just been too much for me as I am really not feeling too great at the moment.

I came home two days before Christmas and since the day after Boxing day I have been going in to the Art shop where I help out, every day.  My boss never gets to have a break and with two small children and the school holidays she was dying to have some time off, so I stepped in to help out.  Everything has been fine though until the weekend when I really started to feel quite tired.  I have been battling with my sinus's as it is since I came home, as has my dad, but sinus washes have so far not cleared the problem.

Sunday, late afternoon I just felt that I needed to go and rest and after a few hours of sleeping with the oxygen I must say I felt better.  I went to work again yesterday, left early and came home absolutely exhausted having blown my nose constantly throughout the day.  I landed up going to bed fairly early and today slept till almost mid-day.  My throat is now scratchy and after eating breakfast at lunch time, went back to bed.  I don't think I would have got up in the first place if it hadn't been for the fact that Rolo was taking over my space in the bed!

Through all this though, everyone who knows I have recently been in hospital keeps telling me how well  I look and it's true, when I came home I was definitely much better with both my lung function improving and my weight - although now I think my weight gain was all water retention from the cortisone as now I am back home and no longer taking the cortisone, I have lost weight, which is a bit of a let down.  This too after I have been eating so much...grrrr!!!!!  I certainly did feel so much better, but to be honest at the moment if my smiling face tells you I am looking better, just know that inside I'm not feeling that way all the time.  Oh well hopefully I will have shaken off whatever is bothering me by the time I go for my next appointment on the 29th.  At least I won't have to go into the shop every day any more and I can continue to help out with stuff at home when they need me to do anything for them.

eating breakfast at midday

after breakfast and before I went back to bed

this is how Rolo took over my bed


afternoon nap

my bed is too small for Rolo and me, I had to go to my parents bed



Thursday, January 2, 2014

A new year

2014 is now into it's second day and I am positive that this is going to be a good year.  I came home from hospital just before Christmas feeling fitter and fatter than I have in a long while.  My weight is up and my lung function has improved so at last I feel that I can hope and dream for better and more.

Kyle gave me such a thoughtful Christmas present.  It is a Samsung Plasma Ionizer, called a Virus Doctor.  It is supposed to eradicate allergens, eliminate influenza viruses and inactivate bacteria and mould.  I don't know how I will know if it is working, but I put it on every night so it runs in my room whilst I am sleeping.  Hopefully I will be able to stay healthier for longer by using it.  My bedroom is obviously the place I spend the most hours in any day, and I can't really do anything about things in the air when I am outside, or visiting or shopping, so it just makes sense to have it working there.

I am looking forward to June this year when my medical aid will finally be accessible for me to use, so roll on to then.  In the meantime I have to sort out my teeth which have been giving me a lot of problems lately.  I don't know if it is the medicines I have had in the past, or my genetic make up or what but my teeth are breaking and I have had no end of pain in the last year with them.  My doctor said I must get them sorted before I am listed otherwise they could cause problems with my recovery after the transplant.  So that's on my immediate list and as for the rest, well I will just have to keep on being fabulous while fighting CF.


Cheers for now and may you all have a fabulous 2014 too.