"What if"

You  may have seen my post on my facebook group about speaking to my doctor about the "what if" with transplant.

Today the transplant Psychologist came to see me, just to find out how things are going. And how I am doing, and am I coping.

I told her about my thoughts and concerns about having the transplant now. I know that it is something that needs to be done, and I have been working towards it. But what if I can keep myself healthy like I am now, and prolong my life before transplant. Most transplant patients have a span of 5 years before they start rejecting. It is a scary thought, that I may only live 5 more years. It is something that I have to come to terms with.

"Dum Spiro Spero" Concert

Hey everyone,

I can't believe that it has been a year already since we had the DUM SPIRO SPERO concert down in PMB.

I am still in search of the photos from that evening. But as soon as I have them, I will let you know.

Admission

It is settled then, I am being admitted next week.  

I don't know whether to be excited or not. Admission is never an exciting time,  being on your own, leaving your friends and family. 2 weeks, 14 days may not sound like a.long time,  but trust me it is.

The endless xrays,  and scans, lung functions and physio is exhausting. Not to mention the boredom,  now that's what exhausts you.

Flu shot

I came across these photos my mom took in March.

I was having my flu shot done. Quite a painful little injection.

At the same time I was having my Port flushed. It has to be flushed with Heparin (a blood thinning agent) to stop the port from blocking.

This happens every month at clinic. And twice at admission,  once when the port needle (a butterfly needle)  is put in, and once more before the needle comes out.

The costs start rolling in

I got this sms today,  despite being on top medical Aid, they still don't pay for everything. This is why I started my fund, because costs like these will start to roll in.

And people who say they haven't had problems with medical aid, are either oblivious,  have too much money,  or are very lucky.

Organ donation

Scary statistics...

Clinic visit

Today was my monthly clinic visit.

Last month I wasn't doing to great,  and my doctor put me on a 2 week course of ciprobay. Which didn't help at all, As you may know I picked up a cold or flu from someone /somewhere this month,  whilst on the antibiotics.

Since then I have been battling,  I am tired all the time,short of breath,  using the oxygen machine, not to mention my headaches and nosebleeds.